One afternoon last summer, our 15 year old daughter Jade complained of feeling unwell. Over the following days her face began to swell up and she developed a pain in her leg so I took her to our local doctors in Norwich where they immediately did blood tests. When the tests came back later that day they showed ...
Our son Robin was only three years old when he was diagnosed with Chronic Granulomatous Disorder which affected his immune system and we were told he would need a bone marrow transplant. The doctors explained that they would need to transfer him to the Royal Victoria Infirmary in Newcastle from our local hospital in County Down in ...
Our son Luke was born with Down’s Syndrome and was also diagnosed with heart problems. The treatment of our son’s heart problems led to Luke having to spend a considerable amount of time in the heart ward at the Leeds General Infirmary, away from the normality of family life. The heartbreak of Luke’s illness was considerably worsened by ...
When our 18 month old son, George, was diagnosed with a rare immune disorder called Juvenile Dermatomyositis in September 2010, our peaceful life in Hampshire was turned upside down. His immune system was attacking his muscles and skin, causing immense muscle fatigue and weakness, to the point all he could do was just about walk, but even ...
When we discovered that our young son Christopher would need an operation to remove his eye due to retinoblastoma, we were very concerned about finding somewhere to stay near to the Royal Children’s London Hospital. The operation was scheduled very early in the morning making it highly impractical for us to travel to London on public transport all ...
Our daughter Honor was born in October 2010 and we were discharged from hospital and had a lovely few days at home. However, on day five of life Honor suddenly became extremely unwell. We took her to our local Accident and Emergency in the early hours and after initial treatment in Addenbrooke’s Hospital, Cambridge, it became apparent ...